Cystic fibrosis is one of the most common genetic disorders in the UK, affecting many thousands of babies, children and young people. The main symptoms are that the lungs, pancreas, intestines and other organs tend to fill up with sticky mucus, which can cause several problems such as severe breathing difficulties and poor weight gain, amongst other complications.
People who live with this incurable condition need a lot of support, and ultimately might need a heart, lung, pancreas and liver transplant if their organs become too damaged. Otherwise, physiotherapy and drugs are used to relive the symptoms, though there are currently many gene therapies being developed also.
One of the main UK organsiations there to help those living with cystic fibrosis, their families or carers. They offer all kinds of practical advice and support on everything about this condition through the website and helpline. They also have expert patient advisers in different parts of the the UK - including Wales - so that people can be helped to find the best possible care.
American-based organisation with a comprehensive website giving support and the latest information about the condition.
This organisation offers advice and support to carers in Wales, and also campigns on behalf of carers' rights across the country. Contact them about any aspect of caring for others, from where to get financial help to your local services.
This organisation provides support, advice and information for families with disabled children.
NHS Direct Wales is a 24 hour helpline, which can give advice about health and health services across Wales. It is staffed by experienced nurses specially trained to give advice over the phone and provide information about all your local services.
Extensive, good quality health information usually provided by GPs and nurses during consultation.
© 2012 S4C
O Gymru / Made in Wales